Dear family and friends,
As you know, I've been dealing with all the awful effects of something called a Chiari Malformation. It is a neurological condition that causes the bottom part of the brain, or the cerebellum, to descend out of the skull. That puts pressure on the brain and spinal cord, causing pain and neurological problems. I've had three major surgeries since 2005 and I'm significantly worse than I was before any surgeries. The reason for this is that the doctors don't know enough about this rare condition to treat it effectively. This is where we need your help. Conquer Chiari (www.conquerchiari.org), a non-profit organization is raising money for medical research. They are holding a walk on September 20, 2008 for that purpose. I will be walking, along with some family members and friends. I'm asking for your support. If you are interested in sponsoring my walk, you can go to their website and pledge online. If you have any questions about chiari malformations or about Conquer Chiari, please let me know. I will do my best to answer them. I greatly appreciate your time and generosity! Love, Heather
I'm coming to walk!!! Yay!!!
Mrs. Michigan America 2005
Just came across your page, read your story...wow..you're a strong mofo!!!! God Bless, I'm praying for you. But it's Dec 3rd, why no updated blog? How are you feeling?
I also just came across your page. Given the current recession here (Canada), I can barely scrap by. It's a sad time. I hope you already are receiving help, and if things start to look up over here, I would love to donate to your cause. Hang in there, and keep positive. You'll pull through :)
All the best from the cold north,
Alex.
Hi Heather,
I also have ACM but luckily I have not presented with any symptoms yet other than some pretty severe headaches from time to time. They found the malformation on a CT scan I had several years ago to analyze some eye problems I was having. Thanks for documenting your ordeal and being candid. This is the best personal resource I have encountered and will certainly help me if I begin to present in the future.
Cheers,
Jay